My name is Dan and I'm writing this blog to document the journey my Mother and I are taking with a little know disease called PSP (Progressive Supranuclear Palsy). It is also known as Steele-Richardson-Olszewski syndrome.
Thursday, June 21, 2012
Steady Progression
For the last few days mom has steadily gotten worse. She continues to have difficulties with urinating and bowel movements. The swallowing and choking has become worse also. Her calorie intake is very low and I worry about her becoming dehydrated. The Hospice nurses have been out a lot and are closely watching her.
Thursday, June 14, 2012
Tuesday, June 12, 2012
Nice visit today.
Mom niece and sister came to visit today. Mom loves when they come. I do too, because its one of the few times I get to see Mom laugh. They just act silly and have a good time doing girl stuff. Its some of the best medicine.
Friday, June 1, 2012
E Kit
Hospice called in the E Kit today and I picked it up. The E kit (Emergency Kit) or "End of Life Kit" as the hospice personnel call it is a collection of drugs to make a patient comfortable during their last few hours of life. It seems too early for this and was a little upsetting picking these drugs up. It makes the reality that some day this disease will take Mom;s life a little too real. Hopefully these will not be needed for quite some time.
Subscribe to:
Posts (Atom)