Unfortunately the PSP symptoms continue to progress. Her vision is getting worse. This is especially frustrating for us all. I can only imagine how frustrating it is for mom. She gets upset just trying to maneuver in her room. I just fell bad because, I can't think of activities for her to do. I'm going to explore some new ideas today.
The other symptom that has progressed, and concerns me the most, is the swallowing. In her last video fluoroscopy a few weeks ago, they observed how mom's esophagus was working. It was not working well. The last few days she has had a lot of choking and trouble swallowing. Because of this she is eating very little. This is heartbreaking to watch. She has an appointment with an upper GI specialist coming up. I fear they will bring up the discussion about the feeding tube, and mom has made it very clear that she wants no feeding tube. I just hope my fears are premature, and we have some more time before the swallowing issue must be addressed.
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