My name is Dan and I'm writing this blog to document the journey my Mother and I are taking with a little know disease called PSP (Progressive Supranuclear Palsy). It is also known as Steele-Richardson-Olszewski syndrome.
Sunday, October 30, 2011
Moms not doing well today!
Mom seemed off when I got her up this morning. She refused to eat breakfast, and would have skipped lunch had I not just fixed her something and brought it in to her. She said her hip is really hurting today and part of me fears we did too much over the past few days. My gut tells me that it may hurt a bit but she is looking for a reason besides the PSP to explain her inability to walk today. Mom can usually get around OK with her walker. Not today. She is really struggling to get any good movement. She can barley keep her eyes open and her speech is very poor today. She wanted to run to the Halloween store we the Kids and I, and asked if we could take her with the wheelchair. She always wants to take the walker. She couldn't even get in or out of the wheelchair. I had to pick her up for all the transfers. I hate these days, and I know that this is a glimpse into what is yet to come.
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